CBS News/ June 20, 2011, 10:09 AM

Many boomers not prepared for elder care: survey

While most of the 76 million baby boomers are no longer caring for their children, more and more of them are playing the role of caretakerfor an older generation: their parents. But how ready are they for this role?

A new survey by Home Instead Senior Care, an in-home care company, shows that an alarming number of those caring for their aging parents are under-prepared.

Almost half of those surveyed by Home Instead said they couldn't name a single drug their parents took. Also, 34 percent said they don't know whether their parents have a safe deposit box, and 36 percent said they don't know where their parents' financial information is located.

"The Early Show" met two baby boomer sisters who are now playing the role of caretaker for their mother.

Until recently, 87-year-old Helen Wright was living a healthy and independent life, even being counted on to drive her friends home.

Kathy Wright, Helen's daughter, said, "People were calling her asking her for rides, because they didn't like to drive at night."

But after a fall a few months ago, Helen's behavior began to change.

Kathy said, "We noticed that she began to be a little bit befuddled about things."

She grew concerned about her mother's increasing confusion, and scheduled a CT scan.

"The radiologist called me back in and said showed me a paper and said she has a massive brain tumor," Kathy said.

Since the tumor was diagnosed, Kathy and her sister, Diane, have suddenly and unexpectedly become full-time caregivers for their mother.

Diane said, "It's, like, part of you does not believe this, that this is the diagnosis, and that you're dealing with this."

Kathy added, "Our first challenge was just taking care of her. The second was trying to find the things that we needed, in order to be allowed to take care of her. It took a while to locate the pieces of information we needed."

"It was like a major treasure hunt," Kathy said. "And, we knew that somewhere, she would have this. So, we'd go through it, and see what we could find. The night we found the strongbox with her long-term health care policy was a wonderful celebration."

The sisters now find themselves playing a game of catch-up, trying to figure out their mother's medical needs while coping with the emotions of her battle with cancer.

Diane said, "I remember going out to the car, rolling up the windows, locking the door, and sobbing. There are times when you know you want to be upset, but you do not have time. You just don't have time."

These last few trying months have taught the women an important lesson, one they share with anyone who will listen

Kathy said, "I have a friend who said, 'Tell me exactly what it is I need to ask my mom,' because this experience showed her that you never know when today they're fine, tomorrow they're not. So sit down, have a conversation with your parents about it. And, preface it (by saying) that it's not a comfortable conversation for anybody. But, it needs to happen, in order to make sure you're giving your parents the very best care possible."

The sisters were unprepared to give their mom that care, so they sought professional assistance.

Kathy said, "You're not a failure for asking for help, because you're gonna do a better job in your care giving if you have that help."

Kathy and Diane are now able to both help their mom, and cherish their time with her.

"Now I can remember her with the conversations we've had -- her sense of humor," Kathy said. "She laughs over who she is. ... That's the kind of memory I wanna have."

On "The Early Show," Ken Budd, executive editor of AARP magazine, said baby boomers are getting hit on a lot of fronts, from care-giving, to financially supporting their kids, to the tough job market.

He said, "Care-giving tends to be a gradual process, taking your father to the doctor or taking your mother to the store, so learning some of this stuff can take a little time."

Budd said taking care of parents seems to be becoming the norm for boomers. He said, "There's already 65 million Americans who provide unpaid care. The value of that care is about $350 billion, a huge number, and is only going to get higher as the population ages."

"Early Show" co-anchor Erica Hill asked how to initiate conversations about care-giving with your parents.

Budd said the conversation often depends on the situation.

"If you're dealing with a parent who is having some initial dementia issues, that's a different situation," he said. "But the key is to have the conversation, and have a candid conversation, to get this on the table."

Financial issues and health issues, Budd said, are key areas to focus on.

"And then, at some point, a full assessment -- financial, emotional -- and find out what a parent's situation is," he said. "That's when you get the information to say, 'Do we need to think about some sort of assisted living?' 'Can the person stay at home?' And nine-out-of-10 people want to stay at home, and they frequently stay there."

So when do you start planning?

"Now," Budd said. "I think you want to start early and often, and have this conversation frequently, because this is not an area where you want to be panicking. You want to plan things out, because you want to respect your parents' desires as they move forward in life."

For more information for your parents, as well as yourself, Budd recommends the information available at AARP.org/caregiving.

For more information, check out these resources:

Caregiverstress.com
SeniorEmergencyKit.com
HomeInstead.com
Answering the Call

Seniors and the Gap
NextStepinCare.org

© 2011 CBS Interactive Inc. All Rights Reserved.
12 Comments Add a Comment
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aryastark says:
My own aging parents will be needing care. We've been researching medicare and looking into health care options for them at <a href="http://www.nvnaworks.org/">home care in Massachusetts</a>. Thanks for this story on home care!
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AddaBright says:
If there is truly that big of a problem with relatives being care experts, there should be a service provided to train them to be better. Some people don't have the money to pay for <a href="http://tendercarefl.com/in-home-health-care-services">in home care</a>, even in places like Port St Lucie. If the relatives can be trained, it might be a better service for the elderly. On the other hand, there are some legitimate medical care things that relatives cannot give and would take years of training.
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JJohnson40 says:
To learn more about how in-home care services can help you and your family cope with the added responsibilities of caring for a loved one, please watch this brief video: http://www.youtube.com/watch?v=y50zVD-7RsE
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b_thorman says:
Visting Angels killed my dog!
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VisitingAngel says:
This is a made up story by Home Instead to get attention. Most family members in charge of the parents care that we speak to, know in detail the type and amount of meds being administered. For a better home care experience open www.visitingangels.com
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Allwright91552 replies:
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I wish it was a made up story, but we are living it every day. Now that we are caring for our mother we do know her meeds, etc. Initially she was a very active senior and did not require us to monitor her medications. One day her tumor either just grew too large or hit a spot and she was unable to communicate with us. We were behind in her care at that point on. We have used HomeInstead to provide additional caregiving, and we are very pleased with the quality of care and attention to detail they have provided our mother. They did not make us up! I am sure Visiting Angels is also a quality offering for seniors, but we were not referred to them. Anything that helps people have a conversation about their needs and wants at this time of their life is invaluable for the parents or the children who will be providing the caregiving. I am sure you would agree with that!
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MyAgingFolks_1 says:
I'm not sure that the blame I'm seeing here is appropriate. True, it would be nice if all aging people prepared way ahead of time for the eventuality of sickness or death. Let's keep in mind though, that the avoidance and denial of death is part of the human condition. There is even a phrase for it- thanatophobia.

I think what is needed, more than just hand-wringing or finger pointing, are solutions for the elderly and the children of the elderly when, indeed, the end is near, and caregiving becomes alot harder.

I believe that by making elder-care experts available to the elderly, their spouses, and their children, during their hours of need and difficult decision-making can make these points of life tolerable.

Jordan Rosenberg
www.MyAgingFolks.com
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Ed_Caracappa says:
It is unfortunate that most families don't think about the long term care of their elderly loved ones until there is some kind of event, like a fall with a broken hip. At that point, decisions are made under duress which does not lead to an optimum outcome. We should be provoking families to sit down proactively and have conversations with their elders about their desires for long term care. That gives families the time they need to research and well as prepare for the role they will eventually play as caregiver.

Ed Caracappa CEO AtGuardianAngel
www.issueswithcaregiving.com
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tellingthestory says:
How could they be since the DEMOS took control of congress in 2007 the net avg loss for all Americans is more than 50,000 in real money worth. Whether it is your home or loss of your jobs or just increased cost of living. We are all poorer now than we were in 1964 thanks to the DEMOCRATS.
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kainos2 says:
My parents are boomers. My dad's parents (WWII vet) didn't have ANYTHING planned ahead with finances, living situation & daily care. Their health took a sudden turn for the worse and my parents quickly got their elder's affairs in order in only a few months. Not all boomers are careless or unprepared. Sometimes their parents hand them an impossible puzzle that demands to be solved very quickly!
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stinger35773 says:
Boomers, its your own fault. Acted like everyone owed you everything yet can't plan for your own future. Everyone gets old, that was pretty well established.
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