Poet Mattie Stepanek, 13, Dies

Mattie Stepanek, the child poet whose inspirational verse made him a best-selling writer and a prominent muscular dystrophy advocate, died Tuesday from complications of the disease. He was 13.

Mattie died at Children's National Medical Center in Washington, the hospital said.

"Mattie was something special, something very special," Muscular Dystrophy Association National Chairman Jerry Lewis said in a statement. "His example made people want to reach for the best within themselves. It was easy to forget how sick he was because his megawatt personality just made you want to smile.

Mattie had dysautonomic mitochondrial myopathy, a genetic disease that impaired almost all of his body's major functions, such as heart rate, breathing, blood pressure and digestion, and caused muscle weakness.

His mother, Jeni, 44, has the adult-onset form of the disease, and his three older siblings died of it in early childhood.

Mattie was profiled last year in The Early Show series on American Hero. He said back then he knew he had accomplished a lot.

"I've gotten books published. I've met famous people that are very nice," he recollected. "I look back and I say, 'Wow. Thank you, God, for giving me this gift. And thank you for helping me to keep going.'"

And he told CBS News Correspondent Tracy Smith that like a typical 13-year-old, he was afraid of a lot of things like scary movies and needles. But the one thing they didn't fear was dying. He prayed every day and he knew exactly where he was going, he said.

When asked what he wanted on his tombstone, Smith says Mattie told her he wanted to be remembered as a poet, a peacemaker and a philosopher. She adds to that, a very good friend.

Mattie began writing poetry at age 3 to cope with the death of a brother. In 2001, a small Virginia publisher issued a slim volume of his poems, called "Heartsongs." Within weeks, the book reached the top of The New York Times best-seller list, the MDA said.

He wrote four other books: "Journey Through Heartsongs," "Hope Through Heartsongs," "Celebrate Through Heartsongs" and "Loving Through Heartsongs."

Mattie's poems brought him admirers including TV talks show host Oprah Winfrey and former President Jimmy Carter and made him one of the best-selling poets in recent years.

(c)MMIV, CBS Broadcasting Inc. All Rights Reserved. This material may not be published, broadcast, rewritten, or redistributed. The Associated Press contributed to this report