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British man with "locked-in syndrome," Tony Nicklinson, fights for right to die

tony nicklinson, assisted suicide, euthanasia
Tony Nicklinson BBC Video

(CBS/AP) Does former rugby player Tony Nicklinson deserve the right to die? Seven years after suffering a paralyzing stroke that left him immobile and unable to speak, the 57-year-old recently asked Britain's High Court to allow a doctor to give him a lethal injection without facing any penalty.

Nicklinson petitioned the court to ensure that whoever ends his life won't be jailed and charged with murder. This week, the court will hold its first hearing on the case.

"Most people who want to die, who are physically able to do so, can lawfully commit suicide," said Nicklinson's lawyer, Saimo Chahal.

But that's not the case for Nicklinson, who has "locked-in syndrome" - a condition in which a person's body is paralyzed but his or her mind remains intact.

Under U.K. law, anyone who helps Nicklinson die could be charged with murder, even if they are carrying out his wishes and could face a mandatory life sentence.

No one suspected of aiding a loved one's suicide has been charged with such a crime in Britain in recent years. But Nicklinson doesn't want to take any chances. Instead he wants to change the legal definition of murder to exclude euthanasia, arguably a long shot.

Nicklinson argues that British law hinders his right to "private and family life" - guaranteed by the European Convention on Human Rights - on the grounds that being able to choose how to die is a matter of personal autonomy.

"He is making a very interesting argument," said Emily Jackson, a medical law expert at London's School of Economics.

"He argues that it's unfair on him and that a humane legal system would enable somebody in his circumstances, with considerable safeguards, to get help from a doctor to exercise a right, which he has in theory, but is deprived of in practice," Chahal said.

Nicklinson communicates mostly through a computer that detects his blinking. In a statement, he described his life as "dull, miserable, demeaning, undignified and intolerable."

He's refused to take any life-prolonging drugs recommended by doctors since 2007, including heart drugs or blood thinners but takes medicines to make himself more comfortable, such as those to reduce muscle spasms. His wife, Jane, a trained nurse, said he could be at risk of another stroke or a heart attack.

Jane described her husband as "a real alpha male" who was very active before his stroke. "He was tall, dark and handsome," she says of the night they met on a blind date in Dubai. The two later also lived in Hong Kong, Malaysia and Britain with their two daughters. Nicklinson chaired a sports club that ran rugby events in the United Arab Emirates, mixing with elite players and officials.

"It was a dream come true for him," his wife said.

Jane and their two grown daughters didn't initially agree with her husband's choice to die. "It was very upsetting and obviously it's not what we want, but it's what he wants and it's his life," she said.

Nicklinson spends most of his days at a computer he controls by blinking, writing emails and surfing the web. Jane said he rarely leaves his room in their bungalow in rural Wiltshire, southwest England, except to watch television in the evenings. He's also writing his memoirs.

"It's amazing what he remembers," his wife said. "His mind is completely unaffected."

Nicklinson's intellectual capacities remain completely intact, much like renowned physicist Stephen Hawking, who recently turned 70. Hawking has Lou Gehrig's disease, a degenerative condition that kills most people within a few years. He has repeatedly said he doesn't think about his physical limitations, which haven't prevented him from revolutionizing the understanding of black holes and the origins of the universe.

In 2009, the British government's top prosecutor said people who helped terminally ill relatives and friends die were unlikely to be charged if they acted out of compassion. From 2009 to 2011, 40 cases of people suspected of helping loved ones die were reported to the government prosecutor; none was charged. Nicklinson is not considered terminally ill.

Other European countries have different rules when it comes to assisted suicide. Euthanasia is legal in the Netherlands but requires a long-term relationship between doctors and patients, a rule that would exclude most foreigners. In recent years, the country's rates of euthanasia and physician-assisted suicide have risen slightly, but still account for less than 3 percent of all deaths.

Assisted suicide is legal in Switzerland, including for foreigners. Switzerland allows doctors to prescribe a fatal dose of medicine for patients to take themselves. Since 2001, more than 160 Britons have traveled to the Dignitas clinic, near Zurich, to die.

Nicklinson considered going to Switzerland, but his wife said he decided against it for several reasons, including the approximately 6,500 pound ($10,000) cost. Nicklinson is currently receiving legal aid from the government to cover most of his lawyer's fees.

Euthanasia is also legal in Belgium, Luxembourg and the state of Oregon in the U.S.

Critics of euthanasia say the U.K. should focus more on improving care for the chronically and terminally ill instead of legislating mercy killing.

"I'm massively sympathetic to (Nicklinson's) situation, but I don't think we should change the law when it will impact hundreds of thousands of other people," said Dr. John Wiles, chairman of Care Not Killing, an alliance that opposes euthanasia. He warned that legalizing euthanasia might worsen treatment of elderly people and the terminally ill.

"However narrow you try to make it, in principle, we would be allowing the killing of other members of society for the first time," Wiles said. "If we change the law, we'll be saying to people, 'If you don't like the care you're getting, you can just end it.'"

Nicklinson's wife, Jane, said her husband simply wants the right to choose when to end his life. She said he began asking to die as soon as he could start communicating after his stroke, once he realized he wouldn't improve.

She said, "I've tried many times to change his mind, but he is adamant to see this through."

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