need to add title here

Code Blue

October 27, 2009 11:10 AM

David and Susan Axelrod on dealing with their daughter's epilepsy.

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by loryaaron June 28, 2010 1:27 PM EDT
Our daughter is 29 as well. Her first seizure was at the age of two. She had as many as 50 seizures a day. After seeing several neurologists, she was eventually diagnosed with myoclonic seizures which are very rare. She went through so many meds that had terrible side affects. There were times we had to lay her down and force the meds because they would numb her mouth. She wasn't controlled until she was four. By then, she was diagnosed with a learning disability and a life long battle with feelings of depression and alienation. The affects on our family were devastating. To this day two of her siblings have little or no relationship with her because her anger and resentment colored their childhoods so. We tried counseling for us,her, her siblings. We belonged to an epilepsy support group. We tried everything to give her a normal life. The meds make her so tired physically and they slow her thought process down so much that learning any new skills take forever. She is so angry and afraid to try anything new. Epilepsy affects everyone.
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by sunnybrightskies November 5, 2009 9:33 AM EST
My daughter recieved a call from my 4 year old grandson's school.
He passed out in class. The nurse told my daughter that he was unconscious for about 10 seconds. This is a scary filling. The doctor is running test on him. I know what you are going thru. Because this is your child and they are helpless. They can not speak to us on what they feel. I pray for all children in the world that they are healthy and safe from everything. Because I believe God is the answer.
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by Billeigh October 29, 2009 2:18 PM EDT
Oh thats so sad, i dont think a little girl like her should have to go through that... I wish you both the best with you daughter and hope she gets better soon
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