Sandra Day O'Connor Makes Alzheimer's Plea

Retired Justice, Whose Husband Suffers From Illness, Presses Congress To Speed Research

(CBS/AP)  Retired Justice Sandra Day O'Connor took her family's private battle with Alzheimer's disease public Wednesday as she urged Congress to speed research and aid to fight the coming epidemic of the mind-destroying illness.

"Our nation certainly is ready to get deadly serious about this deadly disease," she told the Senate Special Committee on Aging.

She has a personal stake. "My beloved husband John suffers Alzheimer's," she said. "He is not in very good shape at present."

O'Connor stepped down as the first female Supreme Court justice in 2005 to move her husband to an assisted care center in Phoenix, near two of their children. Intensely private, she has said little until now of the family's experience except that she regretted having to leave the high court so soon.

According to a television news report in November, O'Connor's husband struck up a romance with a woman who is a fellow Alzheimer's patient and lives at the same assisted living center as him.

The retired justice wasn't jealous about the relationship and was pleased that her husband is comfortable at the center, the couple's son, Scott O'Connor, told KPNX in Phoenix in a broadcast that aired in November.

"Mom was thrilled that dad was relaxed and happy," Scott O'Connor said.

On Wednesday, O'Connor congratulated Congress for passing legislation that would ban discrimination based on genetic testing for a broad range of diseases, including Alzheimer's. "My own sons I have not wanted to go be tested ... out of fear they would be ineligible for insurance," she said.

More than 5 million Americans are living with Alzheimer's disease. The number is poised to skyrocket, with 16 million people forecast to have the mind-destroying illness by 2050. Today's treatments only temporarily alleviate symptoms. Already, the Alzheimer's Association estimates that 10 million people share the overwhelming task of caring for a relative or friend with it.

"I suspect that you will not hear from many of my fellow caregivers directly ... simply because they do not have the resources to take time away from their loved ones in order to come before you," O'Connor said in her prepared testimony.

Against that somber backdrop, a group of scientists, former politicians and well-known names like O'Connor have teamed up to create what they call a "national strategy" to jumpstart efforts to speed research into new Alzheimer's treatments and improve help for caregivers.

The so-called Alzheimer's Study Group won't have its report ready until next year, but began pushing lawmakers Wednesday to start thinking about the needed investment despite tight economic times. Public funding for Alzheimer's has been stagnant for five years, O'Connor noted.

"You will never meet an Alzheimer's survivor - there are none," former House Speaker Newt Gingrich, who co-founded the group, said in his testimony.

[superdem]

Well, these idiot Republicans won''t allow stem cell research, so what do you expect ? Praying to God doesn''t seem to work, I guess. It''s the same old crowd who don''t support *** education, birth control or abortion, so we can''t brew corn into fuel because too many humans go hungry. Stupidity is one disease that CAN be cured.

[upisup]

First global warming, now there''s not enough corn. Next thing ya know they''ll be telling us they got a plan to get us out of Iraq.

[randynason]

There needs to be some accountability from these insurance providers who "write thier own tickets" and bleed premiums from people who are still not adequately covered, due to a lot of fine-printed, technical jargon in the policies. It''s just not right, moral or productive to either good business or the overall societal benefit.

[upisup]

Alzheimer''s disease is a medical disease. A disease that may or may not afflict a lot of people, but that is a thing best boasted about to doctors and research scientists, and not con-artists.

[upisup]

Most people don''t even know what their spouses like and dislike, Sandra baby. And just to show ya how bad it can be, my x thought I wasn''t gay.

[upisup]

Nope.. marriage nowadays is more a status symbol than anything else. A thing ya gotta do. When really its about sphincters.. Sphincters? Make the world go ''round.

[mbcsmith]

Stupidity is one disease that CAN be cured.


--------------------------------------------------------------------------------

Posted by superdem at 01:47 PM : May 14, 2008


And we all hope you seek treatment. In the past year researchers have found methods to use adult stem cells just as effectively as those from a fetus. AND no babies died. Why do you think the debate died.

[upisup]

Willful donorship is so unsexxxxy.

[ajmystic]

Alzheimer''s disease can only be proven after the person has died and had an autopsy. For now, most doctors are calling what people have "Alzheimer''s type dementia". I know because my mother suffers from it. It is a horrible, horrible, disease. I have seen Mom go from being a very active, social person to someone confined to a wheelchair, and she needs help with everyday activities such as eating. My sister and I go to the nursing home every day to help at mealtime, since Mom has to have someone feed her. She tries to talk once in a while, but it makes no sense most of the time. Sometimes I can ask her a question and get an appropriate yes or no answer, but that is not often. It is very hard to see anyone go through this. I only hope that I don''t get this terrible disease, but since my mother, aunt, and grandmother have all had it, there is a very real possibility that my sister and I may get it also. It is very scary to think that I may end up like Mom. I hope they get more research done on this disease very soon and find some way to cure it, or at least stop it at the early stages.

[antoniof123]

Hasn''t Gingrich disgraced himself enough he should just disapear once and for all.

[upisup]

Be sure to tell the nurses at the old folks home to put water in the ashtrays.

[upisup]

If I ever went to congress? Thats what I''d say. I''d be sing''n a tune nobody ever heard before.. "water in the ashtrays.. water in the ashtrays. Water, water, water, water.. in? Ashtray.."

[famc17]

Mrs. O''Conner, I am so sorry for what you and your family have been going through. My Mom has Alzheimer''s, and nobody truly understands the toll it takes on the caregivers and AD Victims until they go through it themselves, which I don''t wish on anybody. I am writing here hoping you see this comment, so that you can learn about a new treatment that has helped my Mom. It is under a lot of scrutiny, but as of now about 100 people are being treated. The treatment is Enbrel, which is an FDA approved drug for RA. Dr. Tobinick discovered it''s benefits for AD when injected in a unique way. The drug Company Amgen does not back the treatment, and says there''s not enough data. There''s not enough data because they won''t do a Clinical Trial, we can''t get FDA approval without the recommendation from Amgen. Amgen seems to be holding this back for some reason. So, we are paying for this treatment with our parents life savings. Please see the youtube videos of my Mom and others , more info on the treatment is there: http://youtube.com/famc17 http://youtube.com/tumates http://youtube.com/user/armoandleo11 With the support of someone as influential as yourself, we may be able to get the Clinical Trial, and FDA Fast Track approval that we so desperately need for our Loved Ones. It''s not a cure, it''s a treatment that reverses some symptoms, then truly stops the progression of the disease. Several patients have been on the treatment for over 3 years and are still maintaining.

Felicia McColl

[sepa2]

If our bloated legal and management and financial sectors are not siphoning off so much money from the system we can invest more in health and other important research like energy.

[bigsk8fan]

yes, felicia my family has had sufferers of alzheimers and parkinsons. however, my family actually has spent time trying to get govt to fund medical research. not condemn it like the republicans that sandra supports. if only republicans got alzheimers and parkinsons then the world would be better off. for the rest of us who want medical research we want it now despite republicans like sandra day o''connor. now that it hits home, she skews from republican dogman. what a hypocrite!

[acolton1]

I lost my mother from Alzheimer''s and if stem cells will help in any way I am all for it. It was awful to see my mother fade away and not remember who I was. I cried and cried the day she passed.

[usbrit-2009]

The cannabinol should be extractable from the plant so you wouldn''t have to smoke it. Anyone know if this has been investigated?

[stevador39]

This woman was on the Supreme Court when Bush was ''appointed'' president. No matter what happens to her and her family, they deserve it. She helped rob the people of this nation of their rights. Millions of Americans have no health care and millions have no homes. She is part of a corrupt system and deserves Alzheimer''s disease.

[aggiekat2004]

My grandmother has Alzheimer'', and the most ridiculous thing we ran across is that Medicare wouldn''t pay for her to be in a nursing home because ALZHEIMER''S PATIENTS DON''T REQUIRE FULL-TIME CARE.

That''s about the most ridiculous thing I''ve ever heard. She was doing crazy things like putting bug spray cans in the oven and watering her electrical yard lamp.

And my parents, retirees on a pension, were forced to pay over $2500 a month to put her in a nursing home...and the government wouldn''t help!!

Anyway, it is a cruel disease, and needs to be recognized for what it is. And when the family starts noticing change, then the government needs to pay attention.

It''s amazing that the "system" will pay for crack ho-s and drug addicts who choose their lifestyle...but won''t help our elderly who are suffering from this debilitating disease.

[aggiekat2004]

Oh, also, when we finally got her into a nursing home, they charged EXTRA because she had "Alzheimer''s type dementia."

Because of loss of control of bodily functions and other issues, they charge more.

And it''s sad to walk through the nursing home, as you hear old folks calling out for nobody in particular.

And grandma doesn''t remember any of us.

[obamawhama]

life is one big test..its not if you live or die but how you lived your life..

live life to its full potential...

[karen091866]

Alzheimer''s Dementia is such a tragic disease.
I work with 26 patient''s (that are in various stages of the disease) on a ''locked unit''....and each day is even more humbling than the previous one.

Thank God for the many Alzheimer''s support groups for family & loved ones that suffer through this devastating disease.

[ourtomorrows]

his woman was on the Supreme Court when Bush was ''''''''appointed'''''''' president. No matter what happens to her and her family, they deserve it. She helped rob the people of this nation of their rights. Millions of Americans have no health care and millions have no homes. She is part of a corrupt system and deserves Alzheimer''''''''s disease.
Posted by stevador39 at 04:52 PM : May 14, 2008

Great post, and actually she deserves much worse, but I can live with this!
Posted by nbrdknkldgr at 07:49 PM : May 14, 2008

both of these posts are repulsive. To say that anyone deserves Alzheimers or anything like it shows a complete lack of humanity and moral character. Such bitter hatred will only destroy you in the end.

[stn_sage]

both of these posts are repulsive. To say that anyone deserves Alzheimers or anything like it shows a complete lack of humanity and moral character. Such bitter hatred will only destroy you in the end.

Posted by ourtomorrows at 09:36 PM : May 14, 2008
--------------------------------------------------
My response: They do have a point. She undoubtedly has ''taken part'' in some actions that have devastated American families. How is she going to be held accountable HERE on earth? She probably won''t BE!
Maybe the Alzheimer''s IS God''s judgment! I merely speculate, but I wouldn''t be quick to dammm their comments, either.

[naucoming4u]

A recent study showed that smoking is definitely linked to the increased risk of Alzheimers.

Smoking is known to restrict the blood flow to the brain, robbing it of vital nutrients and oxygen that keeps the brain cells alive and active, thus opening the door to the Alzheimers affect to become active and progress.

Of course, Alzheimers is also highly genetic, like cancer and heart disease, those within the blood lines will automatically have a huge increased risk.

[hungry1968]

Sorry - but the REAL breakthroughs are going to come from embryonic stem cell research.

You''ll have to wait until Obama assumes the mantle of power from the people hater Bush.

[briannorwood]

I sit on the other side of the political fence from Justice O''Conner on most issues. However, I have always respected her grace and integrety.

Good luck Sandra, maybe you can get those GOP morons in Congress to start supporting stem cell research.

[lochlan-2009]

"My own sons I have not wanted to go be tested ... out of fear they would be ineligible for insurance," she said."

Welcome to the fields of sheeple. Now enjoy your *** reaming.

[babooph]

Cannot be too bad we had 8years of Reagans confusion &they claim he was a great president- Bush is now letting us see a *** can handle the job.What me worry?

[eferrell1]

I totally sympathize with Mrs. O''Connor. My mother has Alzheimer''s and I can understand what she is going through. What I don''t understand is why it has to take someone "famous" speaking up before anybody seems to care? This is not a new disease and thousands of Americans are effected every day. It''s sad that most American maladies are ignored until some like her speaks up.

[ConsiderThis1]

Because of the inordinate reliance on drugs, primarily for drug company profit, there is little said about how vitamin B12 is a factor in memory loss and confusion.

Studies have shown that most Alzheimer''s Disease patients are low in vitamin B12, yet the normal range for vitamin B12 in the United States is hundred of points lower than in some other countries, to include Japan.

If people understood how being low in vitamin B12 affects their nerves, they would be able to take steps to protect themselves, but there is so little true education done on this vital subject.

I have been doing a website on how people can tell in a quick and simple way if they are low in vitamin B12. There are many sites that have copied mine, but many of them are profit oriented and don''t explain that all B12 supplements are not equally useful to our bodies.

Health Boundaries Bite. That''s it in a nutshell. Vitamins aren''t profitable in the same enormous numbers as drugs, so they aren''t advertised on telly. The new drug ads on telly are so dangerous because people see these actor doctors telling them that this or that drug is the answer to their medical problems.

I wish people all knew to look at their fingernails to see whether or not the symptoms they are experiencing are related to low vitamin B12.

[honestabe8]

stevador: why include her family in this? i can appreciate not liking shrub, but to wish harm on her family is just low rent.

[djdinindy]

For too long AD has been thought of as an old person''s disease. It is not. I am now at home caring for my 60 year old husband who was diagnosed 4 years ago. The realy sad thing is that most insurances will not cover certain tests because they think they are excessive although Medicare will. I would think that developing a large database of those who are young with the disease might prove helpful in finding a cure. Information from those like my husband who do not suffer from any other illnesses should be extremely helpful. I am greatful for anyone who can influance COngress to help. Thanks