Comments on: Treating MS Symptoms With Stem Cells

Promising Northwestern University Trial Uses Patient's Own Stem Cells To Treat Symptoms Of Multiple Sclerosis

[earthstarr]

I was diagnosed in 1998 and am currently using IvIgG and Rebif. I would love to be a part of this larger study. How can I go about getting information about participating in the study?

[dxd58830]

I was diagnosed with RRMS in may of ''88. I have lost alot to this disease bur I have also gained quite a bit. My first question is how did the rest of the study patients react. Did they have the same results as Mr. McClure did or is his case one in a million? This sounds extremely promising but I would like to see more studies done.

By the way, George W. Bush never said he didn''t support stem cell research he only said the the government didn''t need to be funding it. Anyonre that wanted to get into stem cell research was able to, there was nothing stopping them. We don''t need the government to be our "nannies".

[lpwoods100]

This is great news for Mr. McClure and others afflicted with the relapsing-remitting form of MS and I wish him continued good health and a lifetime symptom-free of MS. Hopefully, we who are living with the rarest form of MS, primary-progressive, will also one day soon be on the receiving end for treatment and possible cure. To date, there are no effective therapies for people with primary-progressive MS. And finally, Mrs. McClure is mistaken about MS affecting only "40 year old white women". I happen to be black and my symptoms began in my 30''s. She may recall the Congresswoman from Texas, the late Barbara Jordan was black and also suffered from MS. Another well-known black suffering from MS today is the famous dancer from the 70''s, Lola Falana. Richard Pryor the black comedian lived with MS for years before he died. In general, MS affects more women than men and whites more often than blacks. Those living in colder climates also tend to be more susceptible to MS.

[lajc]

They are helping people in other countries and I wish I had the money to go...I would be on the first plane out! I would also be interested in participating in clinical trials for the stem cell transplant... [e-mail]

[lajc]

I just turned 40 in Jan. and was diagnosed is Sept. of 2008...what a present right? I just want my life back and its hard for people to understand that when they are not dealing with this. I know everyones symptoms are different and they may come and go...so far mine have takin a break since they started in June...I hope that this treatment can be available soon.....I hope and pray!!!!

[tammyclouse]

I am 32 years old and have been really bad with MS sice I was 29 3-10-06. I also was diagnoesed with ADEM that caused multiple relapse in ms. I have over 1,000 lessions on my spine and over 60 on my brain. They had me on Chemo for 2 years. because I relapsed over 20 times the first 2 years. I am now in remission since Oct of 2008. I can''t hardly walk and I have been through everything. I couldn''t see for a year. They told me I have done 100 years of ms in the first 2 years. I would be so intrested in finding out all I can about this. I have 3 daughters age 15,10, and 6. My 6 year old does not really remember me being able to walk right at all. It happened so quick. I only had symptons for two weeks when I couldn''t walk at all and was diagnosed. They said all my lessions was only 3 weeks old at the time because of ADEM. It''s were the cold or flu attacked my body instead of my immune system. I had both in Jan and Feb. Was completly cripled by March. I was also told I will never get better but They are trying to keep me from getting worse. So far The CHEMO has finally helped me. God bless you all. Tammy Clouse

[jtmonroe-2009]

I think we all need and want this to be a real find for us. It is a horrible illness that distroys one''s quality of life and should be focused on with even more money and research. I truly feel that Stem Cell research is and was the right path. The last administration was heartless and pushed it aside for selfish reasons. The people should have all options explored when faced with any illness tht distroys life in such a manner. E-mail me at [e-mail] if participating is possible in the trials.

[i4djr8]

I am a care give for a patient with MS and we seen your show on the new research conserning this disorder and my patient wants to know who or what he need to do to be consedered for this reasearch. He found this to be very exciting news in a break through for MS

[pjjb1]

Sorry, I miss typed my E-Mail [e-mail]
to: t10219
your symptoms are so similar it''s scary

[alanpetsche]

"too bad george w bush tried to stop medical science from curing diseases like ms, diabetes, etc."

Too bad your are misinformed bigsk8fan, this miracle of (big corporate) medicine happened in 2006. Do you remember who was president in 2006? This type of successful research (adult stem cell) was never hindered.

Good luck to Edwin, stories like his are a joy to read.

[holder133487]

i don''t have MS but i do have a spinal cord injury. ANY advances in stem cell research is good news to me. one day parkinsons, alzheimers, ALS, MS, CP, and spinal cord injury will be a thing or the past, just like polio is. that day is coming, especiallyy with the Obama administration.

[bigsk8fan]

too bad george w bush tried to stop medical science from curing diseases like ms, diabetes, etc.

[simone0011]

We are also very interested in stem cell research. My husband was diagnosed with MS in 2004. I would be estatic if he could feel normal again and no longer suffer with MS related symptoms. Please let us know about any future studies that become available

[dirob2]

I wrote down a lot of good information just all the comments from people like myself with MS. Thank you all. It would be heaven to feel normal again. If you can supply any further information about the study or when and where new studies might be taking place I am very interested and would appreciate any information you can provide.

[ms4mysavior]

My prayers for your strength and health are with you all.If you are newly diagnosed, you MUST read up on and research MS. Knowledge is key. It also releaves most fears.Depression as well as a slew of other symptoms go hand and hand with multiple sclerosis. Jean,I was diagnosed in Februrary of 1997. On July 19,2008 somebody put me on a merry-go-round and forgot to take me off. There was nothing merry about it. I didn''t begin treatment for multiple sclerosis until March 2003.Denial doesn''t make it go away)I was started on Avonex but only took it for a year.I was discouraged so I didn''t take anything until Oct.2007.(Not taking anthing only made it worse)I''ve been on Tysabri for a year and though I have no side effects from the medication, the damage done from the denial stage and not the not taking anything period, is done. The stem cell studie sounds promising, but the mean time you deserve to live as well as you can, for yourself and your loved ones. Trust me, I''m No Poster Child for multiple sclerosis. When the symptoms get overwhelming and they do from time to time, you(I) NEED a STRONG SUPPORT SYSTEM. For me, that''s My Savior, Jesus Christ! I am diagnosed with multiple sclersis but, I HAVE MS, MySavior.
Be encourage my friend. You have been diagnosed not sentenced to multiple sclerosis. My prayers are with you and all those around you that are affected by this trial. You are chosen not cursed. Find that PEACE passes all understanding and go [e-mail]

[jamyers00]

This is awesome news! I would love to know more about this study. My father has a severe case of M.S. and not able to do much of anything by himself anymore like walking, transfering, going to the bathroom and even eating. He has been in a nursing home for about 6 years now and that in itself has been a horrific experience for our family, dealing with people who just don''t care. I, myself, was also diagnosed with M.S at 17 and have two young daughters that I hope and pray everyday don''t get this disease. Our Family has been through ALOT with this disease and I would love to know more about this and if the studies are still open. It would be a total miracle to have my father back again and my 16 year old brother to see him walk since he has never known him to be able to walk.

[jamyers00]

This is awesome news! I would love to know more about this study. My father has a severe case of M.S. and not able to do much of anything by himself anymore like walking, transfering, going to the bathroom and even eating. He has been in a nursing home for about 6 years now and that in itself has been a horrific experience for our family, dealing with people who just don''t care. I, myself, was also diagnosed with M.S at 17 and have two young daughters that I hope and pray everyday don''t get this disease. Our Family has been through ALOT with this disease and I would love to know more about this and if the studies are still open. It would be a total miracle to have my father back again and my 16 year old brother to see him walk since he has never known him to be able to walk.

[jess031]

I have MS and I am 31 for I was diagnose back in 1992. At this time (of 2008) my balance has worsen to the put Im walking on a cane. I get all my research from my neurologist and my local MS Chapter. Every year I attend the MS Walk for Cure to help myself and others with the problem for I know others have it much worse than me. I currently on Tysabri (every four weeks in a IV) for a year this pass Febuary with no problem, for when I was on Avonex, that was too strong. Currently two of my Aunties and one Uncle have MS with me which is a puzzle for they are sisters and brother plus a Niece (me) with MS. I AM HAPPY to hear this story for to me they are getting closer to a way to fight this along with prayer and that good old "Faith".

I shall keep all of you in prayer for the supporters need help in the understanding as well and to have open mind for us. What works for me is my local gym for my legs even water movements(no heat), try to eat right, water to flush the junk out, my WII Fit works well, laughter always, no negative people at all, try to get out for that BED do hurt you at times (stiffness), take one college class to keep the mine working, and just be me. I do not work so this for me keeps me strong.... Best wishes to you all and we will get a break through soon!!!!

[pavlackplum]

My big sister was diagnosed approx 2 years ago. She has small children and has been without meds for atleast 8 months. Her symptoms are awful and I worry as does everyone around her. Where can we get more information on these types of trials and how do we get involved with this paticular developement. So far she has not qualified for any gvmt programs...Who and what are out there for her. Any info is greatly appreciated. May strength be given to all effected by this disease, and may a cure be found if this isn''t it.

[jeanniemari1]

Oh god. I am a 19 year old female suffering MS. I had to stop my life because I couldnt get health care back home. I moved to where I live now in AR I was just diagnosed in October 2008 and Im getting ready to have yet another MRI because Im on Rebif and my symtoms havnt changed. No better no worse. Ive been constantly dizzy since May (never goes away..no one seems to under stand that.)
I want to be in on this. It looks worth it to me. I want to feel like I DONT have this illness.
My parents and I are going to talk to the neurologist about it soon. If anyone knows anything please email me. Im DESPERATE [e-mail]
-Jean