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- Our thoughts and prayers go out to everyone and their families who are going through this. We know all to well how it effects you. I ,too, was diagnoised with GBS 2 years ago. I was operated on and have gone through radiation and kemo. I see my Dr. once a month and am on my 23rd round of kemo. I go to Eastern Maine Med. Ctr. in Bangor,Maine and have had fantastic care. I feel great and have been able to resume my work as a logger and a Registered Maine Guide. We live in a small comunity and have had tremendous support. Keep the faith and live and again our prayers are with everyone. Thank you.
Ken Swallow Jr. - Reply to this comment
- Thank you so much for the info. I am divorced 47 yr old, mother of two, manage a garden center when I started to have symptoms.My eyes were opened when I flipped twice and tried to climb a telephone pole with my Toyota for no apparent reason. I had surgery on 1/29/07 and was diagnosed with a glioblastoma multiforme. The outlook definitely will rock you! My surgeon,Dr. Claudio Feler told me about Dr. Hassenbusch and I've gone to MD Anderson and had a consult with Dr. Mark Gilbert. I hope to qualify for some of the protocols and possibly this injection, but right now insurance woes are possibly standing in the way of the best treatment options. Would love some help in trying to figure out the options that are available.Thanks to all and prayers go out to Dr. Hassenbusch!
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- To all, my wishes go to you in every thought. My fiance has been going under treatment for this cancer for almost a year now. We just watched the story about Dr. Sam Hassenbusch and would like to know more about the therapy ( the shot ) that he is receiving along with chemo since my fiance is going to Duke as well. I don't know what to say to you all, but i can understand how you're feeling, and please be strong, we all should be.
To Irisho3: I just want to ask you more about the vaccines that your family member is taking! thank you, and best to him. - Reply to this comment
- Our grandson (3 years old) has a "pilocytic astrocytoma" about 70% of the tumor was removed in October. The balance is in-operable due to its location. It is in the optic pathway and also attached to the pituitary gland. He went for another MRI today we are waiting for results. There is no option available due to it's location other than "Chemo" which the consencous of opinions is to wait as long as possible because of his age. The side effects can be rather severe in a child. From all that I have read this is an "orphan disease" with not much funding going to research. The only bright side is that if you if you ever met Chase you would never think that anything is wrong. We all pray everyday for a miracle.
Barry Turano - Reply to this comment
- My heart goes out to anyone having to deal with this. It seems so empty to say to someone else "be strong, keep the faith," but what else can a person say? I'm sorry to what you're going through and will hope for the best for you.
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- My heart goes out to anyone having to deal with this. It seems so empty to say to someone else "be strong, keep the faith," but what else can a person say? I'm sorry to what you're going through and will hope for the best for you.
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- A very dear family member was diagnosed with GBM 36 months ago. I am happy to report he is doing very well. He was referred to the Duke Brain Tumor Center right after his surgery. He does receive monthly vaccines at Duke and has not had a recurrence. We are so grateful to the dedicated staff at Duke. Our family motto is "Keep the Faith" and "Go Duke".
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- ...correction: the song was "Perfect Peace" by Marvin Sapp.
Sondra - Reply to this comment
- Brain cancer affects people of all ages and ethnic backgrounds. No one knows what causes it, and no one knows how to cure it. It is the cruelest form of cancer, since it at its worst, it steals not only your physical functions, but also your very personality, your memory, your awareness of what you used to know and who you are.
Raising awareness is the first step - thank you Katie Couric and CBS News for airing this story. Keep the focus on this terrible disease with more stories and more in depth reporting.
All of us can help, even if we aren't in the public eye. I'm supporting brain tumor research as one way to help someone very important to me.
Craig is the love of my life. He has gliosarcoma, which is the rarest and most aggressive type of glioblastoma (brain cancer), affecting less than 1% of people with brain cancer each year. He was diagnosed in March 2006. There were no warning signs, and this is common with brain tumors. A person diagnosed with gliosarcoma is told they have less than a year to live. He's beating the odds and I believe his strong immune system and focus on nutrition is helping. He's working with Dr. Jeanne Wallace, a world renowned nutritionist who specializes in brain tumor patients. - Reply to this comment
- Brain cancer affects people of all ages and ethnic backgrounds. No one knows what causes it, and no one knows how to cure it. It is the cruelest form of cancer, since it at its worst, it steals not only your physical functions, but also your very personality, your memory, your awareness of what you used to know and who you are.
Raising awareness is the first step - thank you Katie Couric and CBS News for airing this story. Keep the focus on this terrible disease with more stories and more in depth reporting.
All of us can help, even if we aren't in the public eye. I'm supporting brain tumor research as one way to help someone very important to me.
Craig is the love of my life. He has gliosarcoma, which is the rarest and most aggressive type of glioblastoma (brain cancer), affecting less than 1% of people with brain cancer each year. He was diagnosed in March 2006. There were no warning signs, and this is common with brain tumors. A person diagnosed with gliosarcoma is told they have less than a year to live. He's beating the odds and I believe his strong immune system and focus on nutrition is helping. He's working with Dr. Jeanne Wallace, a world renowned nutritionist who specializes in brain tumor patients. - Reply to this comment
