Couric & Co.
August 7, 2008 2:13 PM

Caregivers Of Wounded Warriors Face Their Own Challenges

By
Kelly Wallace
Topics
Behind The Scenes
Kelly Wallace is a CBS News correspondent based in New York.
After producer Tony Maciulis and I showcased a camp for wounded women veterans in June on the "CBS Evening News with Katie Couric," our senior producers encouraged us to find a follow-up story. That was easy. What about the spouses and the caregivers, suggested a contact with the Adaptive Sports Foundation, one of the organizations which sponsors these free camps for wounded veterans and their families. We thought about it and realized while much has been said about the wounded veterans, less familiar are the real challenges and strains of the caregivers who love them.

Think about the numbers. Nearly 33,000 men and women have been injured in Afghanistan and Iraq and those numbers don't include men and women with invisible wounds, the ones dealing with post-traumatic stress disorder. Behind many of these injured veterans, there is usually a caregiver, a spouse or a mom or dad, who is often overlooked.

Twenty-five-year-old Nancy Kules, whose husband Ryan lost an arm and a leg in an IED attack in Iraq in 2005, told us her needs took a backseat until the moment Ryan was able to care for himself. "I think they get used to being catered to, they get used to being taken care of," she said during an interview with Ryan, 27, by her side. "And at some point, you do have to say the reason we rehabbed and worked our butts off for a year, for you to be able to walk, for you to be able to take care of normal things, for you to be able to cook is that so you can get off the couch and make me dinner, that's okay, too."

At a camp this past weekend for wounded veterans and their families, another one sponsored by the Adaptive Sports Foundation and the Wounded Warrior Project Nancy met two women who know what it is like to walk in her shoes. Danielle Andrade's husband lost both his legs in an IED attack in Iraq. In a similar attack, Casey Washburn's husband lost part of his foot.

"It's like sitting with old girlfriends because they know what we're going through and we can relate to each other better than some people we've known longer," Danielle said. "We go to a lot of the events," said Casey, referring to her and her husband. "That brings us together. It's almost like our counseling."

For the story, we wanted an expert – someone who could put the impact on military spouses into some perspective. We met clinical psychologist Barbara Romberg, who started a program called "Give an Hour," encouraging therapists to donate an hour a week to help military families. Since the program began, more than two thousand therapists have donated their time.

Romberg says for every person who has been deployed to Iraq and Afghanistan (1.6 million men and women so far), eight family members are believed to be directly impacted by that deployment – many are the caregivers whose lives have been changed forever.

"Those numbers are huge in terms of the families affected, the children affected and the long-term ripple effects. This is a huge societal issue," she said.

Too often, the spouses or caregivers are reluctant to come forward and say, 'I need help,' Romberg told us. "I think we need to do a better job of telling them that's okay. That we care for them, too. That they are part of the families who serve."

Signs a caregiver needs help include increased irritability, a lack of pleasure, difficulty sleeping, loss of weight or weight gain, difficulty concentrating and relying on substances to escape, according to Romberg.

"The more we normalize it, the more we can feel like this is just part of healing, if I break my leg I go to the doctor, I take medicine, I get it set. If I come back from war or I'm treating a returning warrior, this is what happens to me and I seek help and I heal," she said.

If you know a caregiver treating an injured veteran, consider forwarding them this blog or tonight's story on the "CBS Evening News with Katie Couric." They may need help or they may just need to know there are other people who know just what they are going through. Nancy, now a mother of one of the most darling 14-month-olds we have ever seen, said it best. "When you know you're not the only one doing something then it's always easier… So if you can meet another spouse that can just say, 'Yeah, he's done that' or 'Yeah, he's like that sometimes' or 'Don't you hate it when,' then it makes you feel less, you know, you're not alone."

Add a Comment
by MollyRosencrans December 28, 2011 9:11 AM EST
My husband was seriously wounded in 2008, in Afghanistan. While he didn't lose a limb, he did suffer from burns covering a huge part of his body, became is own skin graft donor, has shrapnel blown through him, suffered hearing loss, a traumatic brain injury, ptsd, serious joint problems from the blast and being thrown 40 feet due to the blast. He also suffers from hypertrophic and keloid scarring as well as restricted range of motion due to the scarring covering 3 major joints. And can't regulate his body temperature. And because he was national guard, we get no help. There is no "service center" unless you live near a base. There are no support groups unless you live near a base. I brought him home from Brook Army Medical Center after we spent the better part of a year there for him to recover under the Army National Guard's CBHCO program. Under CBHCO he was to continue treatment with the VA Medical center. When we came home and tried to set up appointments for him we were told flat out that the VA is NOT prepared to handle the influx of Wounded Soldiers returning from war. That our VA does not treat Burns. Asking for referrals to outside sources and you get denied, they are not contracted with our local burn center. And the VA decided that his diagnoses of PTSD isn't real, that he only had an anxiety disorder. As far as the wives putting their needs on the back burner, that back burner is so far out of reach. We have 3 children, my husband is 90% disabled and I was his fulltime care giver. There are no support groups, training, etc that were available to us. I have taken on the task of caring for everyone. I called our local VA begging for help and I was told by a social worker named Crystal at the Wilkes Barre Va that she's met my husband and in her opinion there was nothing wrong with him. That I was in dire need of mental health help if I felt there was anything wrong with him. Keep in mind, when you are focusing on a Person with a TBI and PTSD they are the invisible wounds everyone talks about. And some days they are better than others. Some days he's sharp as a tack, and other days are really, really bad. That's with out dealing of every day life, before you factor in money issues, noise, kids, bills, work or lack there of, family, etc. There is NO help for many National Guard families or Reserve families. Even letters begging for help to our local congressmen and senators have warranted no responses. I'm more than certain they are hoping we'll just go away. But I'm convinced this is why so many get in trouble and end up in failed relationships/marriages. Because the stress put on them is so severe. Not just by the "every day mundane" but also by trying to cope with who they are and were. They face huge adjustments coming home from a normal deployment, let alone when it's complicated by a long term recovery from being wounded. People move on, the little kids they left at the beginning of the deployment are so much bigger and all of the sudden don't know this "daddy". My husband and myself both agree that the man he was died in Afghanistan, the man he is now is close but there are many gaps in who he was and who he is now. Not to mention no one addresses the caregivers lack of employment. Most of us lose our jobs, due to the undetermined time factor that we must be away to care for our Wounded Warrior. Explaining that unemployment gap on a resume is stressful. Not to mention how a potential employer sees it. I'm curious as to where these stories are?
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