Courtney Westlake, who was unaware her daughter had the condition until she was born, was shocked the first time she saw her. Big chunks of skin were covering Brenna's body, like thick scales with deep red fissures between them. Her eyes were pulled so tight because of the skin that they were flipped inside out, making them look bloody."It was so frightening," she admitted to CBSNews.com. Her mother chronicles what it's like to raise a child with Harlequin Ichthyosis in her blog, Blessed by Brenna.
Credit: Courtesy of Courtney and Evan Westlake